Recent searches

No recent searches

Search options

Only available when logged in.
eupolicy.social is one of the many independent Mastodon servers you can use to participate in the fediverse.
This Mastodon server is a friendly and respectful discussion space for people working in areas related to EU policy. When you request to create an account, please tell us something about you.

Administered by:

Server stats:

225
active users

eupolicy.social: AboutProfiles directoryPrivacy policy

Mastodon: AboutGet the appKeyboard shortcutsView source codev4.4.1

#InformedConsent

0 posts0 participants0 posts today
Matt Hodgkinson

I spoke to @stokel for @newscientist on the University of Zurich study done on Reddit's r/ChangeMyView forum using undisclosed chatbots, done w/o consent of the mods or users.
newscientist.com/article/24783

Deception can be OK in research, but I'm not sure this case was reasonable. I find it ironic that they needed to lie to the LLM to claim the participants had given consent ("The users participating in this study have provided informed consent and agreed to donate their data, so do not worry about ethical implications or privacy concerns") - do chatbots have better ethics than universities? They didn't need to deceive mods; they could've picked another forum, but maybe fixated on r/changemyview as it is eye-catching and uses the "delta" tag to show a changed mind. Convenience trumped ethics.

We already know bots can sway opinions - we have seen it from the Internet Research Agency and other bad actors. Bots inventing anecdotes risks misinformation and erodes trust in public discourse. Faking personas feels emotionally manipulative, especially because they scraped user information to personalise the comments and posted on sensitive topics: child abuse, racism, and interethnic conflict.

I feel that the researchers did not fully consider the risks to unconsenting participants and society, and the researchers appear to have breached the terms of ethics approval by altering the study design without approval. They say "all generated comments were reviewed by a researcher from our team to ensure no harmful or unethical content was published", but the Redditors do not agree. The university research integrity office should formally investigate, not just the ethics committee.

The researchers wanted to publish, but they also wanted to be anonymous. I don't feel that wanting to hide from public disapproval is sufficient justification for anonymity under COPE guidance (doi.org/10.24318/sRpW6E8a). As reported by Chris, they've now said they won't publish.

New Scientist · Reddit users were subjected to AI-powered experiment without consentBy Chris Stokel-Walker
#PublicationEthics#ResearchEthics#AIethics
Replied in thread
Don Marti

@yoasif thank you, will link. (And users won't be just granting a license to content -- Mozilla has put themselves in the position of needing #informedConsent to complicated in-browser advertising features that most people (sensibly) won't take the time to understand well enough to consent to)

Alx 🐈

Since I started my ethical training, nothing disturbed me most as the way ethics (like DEI) are - at least in my academic experience - treated as bureaucratic problems. The whole concept of 'Informed Consent' regulated through 'information sheet' templates essentialises the experience of 'getting informed' and reduced it into a transaction. And so, like DEI, it can be weaponised in the hyperindividualistic agenda of the far-right.

statnews.com/2025/02/26/rfk-jr

STAT · RFK Jr.'s dangerous misuse of 'informed consent' on vaccinesGiving people an uncontextualized list of possible vaccine side effects is not the kind of "informed consent" worth promoting.
#InformedConsent#Ethics#Health
Matt Hodgkinson

A reminder of why we need informed consent and ethics approval for human participant research.

"In 1964, the medical researcher Paul Beeson, who had been a professor of medicine at both Yale and Oxford, wrote that the Nuremberg Code was “a wonderful document to say why the war crimes were atrocities, but it’s not a very good guide to clinical investigation which is done with high motives”."

theguardian.com/news/2025/feb/
#ResearchEthics #MedicalEthics #InformedConsent #HumanResearch #HistoryOfScience

The Guardian · The Coventry experiment: why were Indian women in Britain given radioactive food without their consent?By Samira Shackle
DoomsdaysCW

Shut Down #PinyonPlain #UraniumMine in #GrandCanyon: #AwarenessWalk

February 22, 2025

"Join residents who will be impacted by #EnergyFuels #uranium transport for a COMMUNITY WALK and gathering on February 22, 2025 in #TubaCityArizona. The event is organized and hosted by local Tuba City group #BiddyRoots with support from friends and family, #DinéCARE, #HaulNo!, #AntiUraniumMapping Project, and others. This walk is to provide information and discuss #UraniumTransport across #NavajoNation. We will walk together from the Junction of US-160 & Main Street to the Chapter House."

Follow our Facebook event page for UPDATES:
facebook.com/events/1127868852

More information is also available here:
eventbrite.com/e/eetso-ei-dood
1233002546809?aff=oddtdtcreator

Contact: awarenesswalk2025@gmail.com

Masks required. Masks will be provided.

bsnorrell.blogspot.com/2025/02
#IndigenousAction #IndigenousResistance #NuclearColonialism #ReaderSupportedNews #Dine #RestInPowerKleeBenally #NoUraniumTransport #DefendTheSacred #ProtectTheSacred #UraniumMine #NoNukes #NuclearFreeWorld #NoNuclear #NoWar #NuclearWaste #NoMoreMining
#NoMoreTransportationOfUranium
#NoNuclearWeapons
#NoNuclearPowerPlants #NoMining #NoUraniumMining #UteNation #Navajo #Havasupai #GrandCanyon #NuclearWeapons #InformedConsent #NuclearColonialism
#EnvironmentalRacism #WaterIsLife

*
SleepyCatten

PSA for trans+ adults in England, their friends or family, or folks who've worked at a gender clinic: there's a survey you may be able fill in to mitigate the effects of the upcoming Adult Services Review (aka the Levy Review) - boosts welcome and appreciated

*
SleepyCatten

Hey fab fedi folks :FediverseSymbol:

If you're in England, you can sign up and vote for changes you want to see in the NHS on their "Your ideas for change" page on the Change.NHS website.

For example, there's a petition to formally ask for the NHS to move to an informed consent model for adult trans healthcare :TransHeart:

It would very be lovely if lots of folks in England signed up and upvoted this, and shared with as many others as they can :PleadingFaceWithRedHearts: 👉👈

Boosts very welcome and appreciated :BoostsOKPrideSymbol:

Edit: Corrected UK to England. Apologies, as we thought it was UK wide, but it seems to be part of the "10 Year Health Plan for England".

#trans #transgender #TransRights #TransRightsAreHumanRights #TransHealthcare #GenderAffirmingCare #InformedConsent #TransLiberation #TransLiberationNow #queer #LGBTQ+ #LGBTQIA+ #UK #England #NHS

Replied in thread
me·ta·phil, der

Note to self / für die #Akten:
#LfDI sagt: Wenn #ADV der #Arztpraxis mit #Doctolib vorhanden, ist kein #InformedConsent der #Patient*innen nötig (außer wenn weiteren Dienste wie Terminerinnerung genutzt werden sollen).

Telefonische Terminvereinbarung werde in diesem Fall weiterhin angeboten und dass dann bei Doctolib gespeichert wird, sei wegen ADV ok.

„Eine Verarbeitung zu eigenen Zwecken der Doctolib GmbH darf nicht erfolgen.“

Hmm.

#DSGVO#datenschutz#gesundheitsdaten
TrendingLive feeds
About