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We're kicking off #PrivacyCamp24 now, watch HERE: https://privacycamp.eu/
Are you ready to 
️ reveal, rethink and change the systems ️ ?
digital systems of exclusion #HealthData & patients' rights #Privacy is big business extractivist #tech solutions for the #ClimateCrisis
Share your thoughts with us in this thread!
Looking forward to a deep-dive discussion at #PrivacyCamp24 comparing #healthdata regimes in the #EU and #UK and how (and if at all) they protect #patients' rights.
Of course #KULeuven clinical #pharmacology researcher Teodora Lalova-Spinks makes clear from the start that primary and secondary use of medical records under the proposed #EHDS is not the same regarding #privacy.
Interesting how in #England, only very few patients actually use their opt-out right for secondary medical data use.
Reasons according to Nicola Hamilton on the #PrivacyCamp24 panel: People don't know about their right. And defaults matter.
A consent requirement for secondary use in the #EHDS would have been so much fairer. 
Hm, Benoit Marchal from the #PicAps Association claims that when 10-20% of people were to opt out of secondary use of medical data, the other 80% would become useless because those opt-outers were "the most interesting data".
Really not sure why this would be the case. 
it all down.Despite some gaps and unanswered questions this was a really interesting panel on the #EHDS, big thanks to @bisilisib for the moderation!
Next up: #Privacy is Big Business: How #BigTech instrumentalises #PETs to expand its infrastructural power. 
Featuring @KrisShrishak, @Thijmen_vg, Donald Bertulfo, and @carmelatroncoso, moderated by the one and only @Seda Gürses :)
#PrivacyCamp24 speakers @KrisShrishak and @ThijmenStar show easily how transparently corporations like #Amazon and #Google use their #PET products to increase their infrastructural power and take over entire markets. 
It's really wow to hear Dr @carmelatroncoso, who worked on the #covid19 contact tracing protocol in 2020, tell how #Google and #Apple used their power over their mobile OS to make life hard for those building the protocol and the actual apps.
She's citing take-it-or-leave-it kind of power, in particular through #API design and unilateral changes to it.
Excellent argument made by @carmelatroncoso at #PrivacyCamp24:
#Privacy is not about protecting your data, it's about protecting *you* from effects and actions you'd rather avoid. It's a means to a very important end.
